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Love through illness

They both live with multiple sclerosis. Together, life is great. 鈥淚 got her number, and phoned her up a couple of days later,鈥 Rob颅ert says, recalling the moment he called Anne for the first time. 鈥淗e made me wait!鈥 she interjects. Robert Roy and Anne Dub茅 laugh as they reminisce on how they first connected 18 years ago. Today, they share a love as deep as the understanding of the disease they both live with: Multiple Sclerosis (MS).

Anne and Robert鈥檚 home is bright and welcoming, even on a chilly Monday morning. What is most striking about them is their openness and resilience. Their honesty is both refreshing and humbling.

Robert very clearly recalls the phone call he shared with his best friend in 1999. 鈥淗e called me up, and he was like 鈥業 got a girl for you, she's got MS like you, it could be interesting. My best friend had a girlfriend, and her sister was Anne's neighbour.鈥

Robert phoned Anne, and the two of them immediately began comparing notes. They shared their experiences with MS, their backgrounds, and what they had been through. It was cathartic.

Anne and Robert were diagnosed with MS in 1986, when they were both in their early 20s. MS is a disease that manifests itself differently depending on the type and person, and as Robert explains, his progressed much slower than Anne鈥檚.

鈥淪he was remitting-relapsing, and is now secondary-pro颅gressive. I鈥檝e always been primary-progressive,鈥 he says. (See sidebar, "Different types of Multiple Sclerosis", on page 4.)

The couple recall their first date at a restaurant, where they met face-to-face. The connection between the two of them was instantaneous.

鈥淭here was no hiding of our problem, which is a reflex when you meet someone for the first time. It's not something you want to talk about. But for both of us, it was easy to relate,鈥 Robert explains.

鈥淲e just understood each other,鈥 Anne adds.

While Anne and Robert had a lot in common, they still had their own respective lives. Anne had a child from a previous marriage and a dedication to her career at the time as a char颅tered accountant. Her clientele was based in her area as she worked from home. The two spoke frequently, keeping each other company.

鈥淚t was a bit complicated because she was living in Terre颅bonne. She lived there for 15 years, and she was scared of the city,鈥 Robert explains.

鈥淥h yes, Montreal was so scary!鈥 Anne laughs.

With time, the connection drew them closer together, and in 2000 they were ready to make the next step and move in together in Montreal. Robert says that they were synchronised from the start.

鈥淗e's very patient!鈥 Anne adds.

鈥淎nd she鈥檚 not,鈥 he jokes. 鈥淏ut really, we鈥檙e just always in a good mood together. There鈥檚 nothing that she does that drives me up the wall,鈥 Robert says.

A 鈥渉eavenly鈥 match

鈥淎nne shakes a lot; she has minimal use of her hands. But she's very strong in the lower torso. I don't shake, but I am weak in the legs. So this is where the balance kicks in,鈥 Robert explains.

Anne agrees that their relationship is a very balanced when it comes to helping each other with every颅day tasks. Anne no longer works, and Robert works part-time. They are both very appreciative of their helper, Martine, who is very much a part of their family.

The couple, who are both followed by Montreal Neurological Hospital 鈥 The Neuro鈥 Neurologist Dr. Jack Antel, take their appointments together. Robert calls himself Anne鈥檚 鈥渨alker,鈥

because she uses Robert鈥檚 wheelchair for support when the two of them go in for check-ups. They say that it鈥檚 quite the sight.

鈥淢any times when we go to the Neuro either a nurse or a doc颅tor will say, 鈥榃ow! You really complement each other, a match made in heaven,鈥欌 Robert says, laughing at how clich茅 it sounds.

During their free time, the couple enjoy watching television and spending time in each other鈥檚 company. Weather condi颅tions and mobility make it an issue to go out on date nights, but Anne and Robert take advantage of the opportunities they have, occasionally going to dinner with family.

鈥淲e鈥檙e very easy going. It鈥檚 calm, it鈥檚 smooth, and it鈥檚 just perfect for me,鈥 Anne says of their day-to-day life.

鈥淚've told myself a long time ago, the worst was behind us. It might sound weird for somebody who doesn鈥檛 have MS, but the quality of life is great. It鈥檚 all relative,鈥 Robert explains.

Both Robert and Anne agree that a major contributing factor to their happiness is the companionship and unconditional love they are enveloped by each day. It鈥檚 the feeling of always having someone to talk to, openly and unfiltered, especially when liv颅ing with a disease like MS. It can be emotionally, mentally, and physically draining, and being partners allows them to take on a different perspective when combatting the disease.

鈥淚f I鈥檓 being honest, when you live with a handicap, finding someone is like a casino shot. When you find someone I think you appreciate it even more,鈥 Robert says. 鈥淭he major thing we have in common is we truly and deeply understand each other.鈥

鈥淎nd that's big,鈥 Anne adds.

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The Neuro (Montreal Neurological Institute-Hospital)听is a bilingual academic healthcare institution. We are a听91社区 research and teaching institute; delivering high-quality patient care, as part of the Neuroscience Mission of the 91社区 Health Centre.听We are听proud to be a Killam Institution, supported by the Killam Trusts.

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